The Role of Oxidative Stress, Gastrointestinal Disturbances and Metabolic (mitochondrial) Problems with #Autism

I would like to introduce our Featured Guest, Becky Peabody Estepp, in an effort to provide a variety of information for our readers! Becky is the Director of Communications at the Elizabeth Birt Center for Autism Law and Advocacy. I hope you will give her a warm welcome and enjoy the post that she has shared with us.                                                                      Lorrie                                                                      

There's something about the 4th of July holiday that mainstream PR people love. That's when they bury science that they don't want the general public to think about too much. 

Below you will find an article from the Wall Street Journal that goes over the role of oxidative stress, gastrointestinal disturbances and metabolic (mitochondrial) problems with autism. Again, hallelujah that these conditions are being legitimately linked to autism. Lets hope this will lead to widespread treatment for kids with ASD.

But, on the other hand, I might need to go run 20 miles to use up the energy (and anger) I had when reading this. When my boys were both scoped 10 years ago we were about to get on the plane to NYC to go to Lennox Hill Hospital. At the last minute, our doctor called to tell us to not drive to the airport. Lennox Hill revoked his rights to practice there when they found out he was scoping kids with autism. It was too controversial and they wanted to stay out of the fray.

What about Dr. Wakefield who has been vilified by the medical community and traipsed around the world as a fraud? You know what his original case study was about, a novel form of GI disease in kids with autism. Isn't that in a sense what the last two articles have been about this month?

So again, we are back to the "Wag the Dog" analogy. The science is being managed and spoon fed to the public. Most people would miss this story because they are on the road with their loved ones for the biggest summer holiday. Just like in 2011, when the Stanford twins study came out that said, "Oh yeah, you know how we always said autism is genetic in almost all cases? Well, guess what? It is almost always environmental. Pass me a hot dog because it is the 4th of July. And watch some fireworks tonight."

But if the topic of this new study comes up down the road in some professional setting that kids with autism suffer with oxidative stress, GI disorders and mitochondrial dysfunction; the scientists can all say, "Oh yes, A VERY important study came out in July showing the biomarkers of these problems.....blah, blah, blah." And they can take credit for this ground-breaking science and package it exactly how they want it and deliver it to the public. Never mind that there have been several brave and amazing doctors who discovered and treated kids for these disorders for over a decade. And who were and are still trying to stop what this sentence says in the article.

"With one in three families affected by neurodevelopmental or cognitive disorders, this finding could have a far-reaching impact. As a pediatric gastroenterologist, I am encouraged to see research that seeks to unravel these co-occurring medical conditions that can seriously impact a patient's quality of life."

One in three families......just think about that. *Becky Peabody Estepp

*And there's always one word in each of these press releases that will differentiate the mainstream from us. The word in this article is "co-occurring" as in "co-occurring medical conditions."This scientist just heavily implied that the oxidative stress, the GI problems, and mito issues are just a coincidence that many individuals with autism are having, it's not the cause or has anything really to do with the cause.

A BIG "Thank YOU" To Marianne Ross, AMC Theatres and #Autism Society For Implementing Sensory Friendly Films!

Not many people know how the very first "Sensory Friendly Films" came into existence. It was after Marianne Ross, a mother of a seven year old daughter with autism, was asked to leave a movie theater because other movie-goers were bothered by her daughter's outbursts. The frustrated mother called an AMC movie theater in Columbia, Maryland and spoke to the theater's manager who took the time to listen to her about the adaptations the company could make to help children with autism, and their families, be more comfortable or accepted while watching movies. 

It has been just a little over four years since AMC Theatres and the Autism Society have teamed up to bring families affected by autism, and other disabilities, a special opportunity to enjoy their favorite films in a safe and accepting environment on a monthly basis with the "Sensory Friendly Films" program. In order for AMC Theatres to provide a more comfortable setting for this unique audience, the movie auditoriums will have their lights brought up and the sound turned down, families will be able to bring in their own gluten-free, casein-free snacks, and at most locations, no previews or advertisements will be shown before the movie. Additionally, audience members are welcome to get up and dance, walk, shout or sing - in other words, AMC's "Silence is Golden" policy will not be enforced unless the safety of the audience is questioned.

This coming Saturday morning, June 29th at 10:00 am, the scheduled "Sensory Friendly Film" is Monsters University, a computer animated comedy film produced by the renown Pixar Animation Studios and released by Walt Disney Pictures. If it is anything like Disney Pixar's Monster's Inc. that came out in 2001, it will be a good movie for us to take our families to see. I would like to ask you to enjoy the movie and then be sure to thank the staff that make it possible for our families to do so without being asked to leave, or at least ridiculed by other movie-goers. This will let them know how much we appreciate the time and effort that goes in to providing these films to the autism community!

After The Week That I Have Had, I Will Definitely Need a Refill On My "Pockets Of Patience"!

I don't want anyone to think that I don't cherish every little bit of time I spend my family or enjoy the volunteer work that I elect to take on. It's just that, every once in a while, I feel like I need a refill on my Pockets of Patience! This last week, the boys and I attended Vacation Bible School at a church that we have recently became involved with. My initial goal was to shadow Nathan as he moved between each activity, interacted with the other children and learned more about how God sent his Son to give us eternal life through salvation. It is difficult for Nathan to remember to initiate "self-control" when he becomes frustrated but, overall he seemed to be transitioning well into this new environment. 

If you follow my blog posts, you may remember that a month ago we had quite a few tornadoes that destroyed a large amount of homes, businesses, hospitals and took lives of loved ones. Many of the people affected had been signed up as volunteers during VBS but, understandably, were not available because they were now taking care of personal business related to property loss, insurance claims, etc. It hadn't occurred to me until I just happened to overhear someone asking another individual if they could help in another area. I don't tend to wait for someone to ask me if I can help, I immediately jump in where I am needed! After I explained to Nathan what I wanted to do and asked if he would be alright, I went over to ask if I could help them by volunteering where they needed help. I am sure having a complete stranger, someone they did not know anything about, walk up to them and volunteer to work with children caught them off guard...it would make me apprehensive, to say the least!

Within a matter of a few minutes, I had been signed up as a  volunteer, introduced to the other volunteer that was working with the group that I was assigned to and directed to the location of our current activity for that day. The first day went by faster than I anticipated! I was excited about being able to contribute towards my church's children ministry, even if it was such a small part. I haven't been in a church this size since I was a teenager, which was a very long time ago! I was physically exhausted because I am out of shape from not exercising regularly and literally overwhelmed with the number of people that I had come in contact with during those few hours. Like my youngest son, Nathan, I tend to get cranky when I get frustrated or irritated. I have to continuously ask God for more patience, and understanding, in order for me to accomplish my daily routines, deal with unforeseen things that pop up and sometimes even when forgiving myself. 

Being able to contribute towards the VBS of the church that we have just become involved in was a totally amazing experience, while at the same time, it was definitely outside of my normal comfortable zone. I have recently been trying to be more accepting of change when it happens, doing new things with my own children when we have the opportunity and improving on my skills of being a better parent and full-time advocate for children with autism. This will not happen right away but, it will eventually become easier for me to venture outside what I consider to be my "normal" comfortable zone.

The most important thing is that each of us remembers, when something makes us uncomfortable, that there are others out there dealing with less than desirable circumstances. Learning to step outside our own comfortable zone, to help someone in their time of need, makes each of a Good Samaritan and shows others we are willing to follow in the footsteps of Christ. I only ask that each of us will take the time, not if but, when the opportunity presents itself to make a difference in someone's life. One of my ongoing goals in life is to #PayItForward and I hope you will choose to do so, as well!

I Would Like To Introduce You To "Helping Hands Worldwide"

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I joined the Helping Hands Worldwide community about seven months ago. It is an honor to be a part of this special group which helps people who are struggling financially, due to having a child or children with special needs or medical condition. This group lends the needed support to help make sure that each child receives either a birthday present or Christmas present when the child's parents can not afford to provide a gift. Parents/friends can send a personal message with details on the child so that the group can organize a little special gift from all of us in the Helping Hands Worldwide community. 
The Helping Hands Worldwide community is in need of more individuals, or even families, interested in becoming a Hero in either the "Children In Need" program or the "Heroes for Kids" program. Are YOU interested in putting a smile on a special child's face because you are willing to make sure that he or she has a birthday present and a card, or a Christmas present, on that special day in their life?!? Please take the time to visit Helping Hands Worldwide so that Dee Williams can help you get you registered for the program! 
If you are interested in the other various groups featured by Helping Hands Worldwide, please check out the following: 

• Children in Need (for children on our list who's parents cannot afford a gift) 
• Adult Birthday Group (cards for adults only - senders & recipients) 
• Heroes for Kids (volunteers who would like to sponsor children in need) 
• Heroes for Adults (sending cards or ecards to parents of special needs kids) 
• ASD support group 
• Financial Resource (forums by state/country) 
• Special Education Resources (forums by state/country) 
• PenPals for Kids (where you can help your child find a penpal) 
• PenPals for Parents (where you can find yourself an adult to talk to) 
• Prayer Group (for those needing prayers and who will pray for others) 
• Special Diet Requirements (for those with special dietary needs & food allergies) 
• Weight Loss Support (forums for different diets, so you can find support) 
• USA Smart Phone Drive (for people who can help gather or donate used smart phones with touch screens and the phone charger. The phones will be reset to factory setting, apps loaded and placed with children in need of assistive technology, who's parents cannot afford an iPad or iTouch to download apps on, so Helping Hands Worldwide can make a difference and help them with a new way to learn!)

Your help is most needed in helping to make sure that each of these wonderful children receives a present on their birthday and Christmas. It is an awesome feeling to be able to assist their parents make sure that special day is one that they will remember!! Please be sure to mention that Lorrie Servati of "Nathan's Voice" sent you. I look forward to hearing from anyone that wishes to leave me a comment below. Thank YOU for taking the time to read my post and be motivated enough to visit Helping Hands Worldwide!

Even With Having To Relocate Because Of Last Week's Tornadoes, It Couldn't Stop Camp Noggin 2013!

     My boys and I have been looking forward to Camp Noggin 2013 since we found out how much FUN it was at last year's camp! This is an awesome camp where children with autism and their siblings can enjoy a week of day camp, meet new friends and have FUN learning things in an autism-friendly environment. We have a fabulous director and assistant that spend all year preparing the schedule, snacks, activities, awards ceremony and the extraordinary Camp Noggin t-shirt that you see above. 

     Last Friday's tornadoes tore through at least three counties leaving damages, power outages and took the lives of at least twenty. The one that ripped through El Reno last Friday evening affected families, businesses and nonprofits like El Reno Youth and Family Services where we normally have our beloved Camp Noggin each year. Our wonderful Camp Noggin director, while dealing with no power in her own home, wasted no time in locating another location so that we could provide this long-awaited week of day camp for these special children. 

     We are very thankful that an area church was gracious enough to host the autism day camp this year but, our spectacular Camp Noggin will be back at the El Reno Youth and Family Services next year, where it belongs. For more information on how the tornado has affected our Camp Noggin sponsor, El Reno Youth and Family Services, please check out their website here. Thank you for taking the time to support and follow our autism journey!

     

How To Become Your Autism Child’s Advocate While Maintaining Your Household, part 2: Scheduling

I am thrilled to share How To Become Your Autism Child's Advocate While Maintaining Your Household, part2: Scheduling, my guest article on Character Booster, with you! I hope that you enjoy it, share it with your friends and find the time to leave me a comment after my guest article on Character Booster. 

Thank YOU for your support!!

How To Become Your Autism Child's Advocate While Maintaining Your Household

Character Booster asked me to write another article for them a few months back. We decided to split it up into two posts so that everyone could get the most out of each segment. I am delighted to share the first part with you today! Please take a few minutes to visit Character Booster and read my guest article, How To Become Your Autism Child's Advocate While Maintaining Your Household. Feel free to leave me a comment under my article on Character Booster so I know how the information might help your family. Thank you for your support!