Nathan and I had a follow up appointment on Thursday with the Pediatric Orthopedic Specialist. This visit was to get the results from the second round of lab tests to discuss the next step in Nathan's progress. Nathan has been on restriction for the last week from PE and recess so that the swelling on both of his hips would have a chance to diminish enough that he could heal. The Specialist said that the Creatine Kinase (CK) level was still elevated more than what we had hoped. It had come down some for him to get to have his daily recess time back but, not enough for the doctor to give him back his PE class that he has two times a week. The doctor also said that as long as Nathan didn't have to do a ten mile hike that he could attend day camp this next week at Camp DaKaNi through CampFire USA. We have a follow-up appointment to see the Specialist again in a month where Nathan will get clearance to rejoin his classmates for PE. He is more than satisfied for the time being with getting his recess back and getting to go to day camp this next week!
I will be posting more about Camp DaKaNi and their upcoming Camp C.A.N.O.E. for children with special needs in the near future. I hope everyone has a great weekend! Our family will be attending the much anticipated "Sensory Friendly Film" tomorrow morning of Dr. Seuss' "The Lorax" at the AMC Theater co-sponsored by the Autism Society. If you are interested in checking it out, click on the tab at the top of the page, titled "Autism Society", then scroll down to where it gives you the link to check out the featured "Sensory Friendly Films". This monthly special showing has been a blessing for our family because the 'Silence is Golden' rule is thrown out the window to accommodate those with special needs who need the freedom to move around and express themselves, like our son. The theater also keeps the lights up just enough where the children feel safe and the volume at a lower setting for those with sensitive ears. A "win-win" situation for families that want to see a movie on the big screen but, worry about how their family would be accepted by other movie goers. If you know someone that this would be of interest to, please share this with them! Thank you for following Nathan's Voice!!
Sending positive vibes to you & Nathan. You may want to give everyone @ OMS a heads up in the Big Talk Room...
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